Not what I expected

What I expected was "Great news - we got it all out! The margins are clear!"

The news I have is just confusing. So, good news first, there was no invasive cancer found. Bad news is that the amount of non-invasive (LCIS) was extensive. It couldn't all be removed, or Dr. O'Holleran would have had to remove at least half of my breast (and possibly more).

Now what? I explore my options. What are my options? I don't know yet. I meet with Dr. O'Holleran next week to discuss what he, as a surgeon recommends. The words "bi-lateral mastectomy" came up several times (do you hear me swearing? 'cause I totally am having a moment right now.) Then I meet with an oncologist (as yet, TBD) to discuss other options.

I have time to become educated. Since it's not an invasive cancer I get time to educate myself on my options. There's a 20 - 40% chance that I will develop an invasive breast cancer in the future. Unless, of course, I have a bi-lateral mastectomy, then there are no breasts left for cancer to invade.

I've googled the crap outta LCIS and there's not a lot of info out there. Or, not a lot of HELPFUL info. Like this: " LCIS isn't cancer. But being diagnosed with LCIS indicates that you have an increased risk of developing breast cancer."

Or this: "Women with LCIS have an increased risk of developing invasive breast cancer in either breast."

"LCIS does not require treatment in the way you might normally think of cancer treatment, such as needing to have surgery, radiation therapy, and chemotherapy. You and your doctor may decide that you should undergo careful observation to watch for any signs of invasive breast cancer."

"Keep in mind that LCIS is not an immediate threat to your health. You have the time to consult with your doctor and weigh all the pros and cons of risk-reducing surgery."

Sigh.